Update on my Daughter

         My daughter has had ANOTHER round of testing yesterday and hopefully the last. I know I am a little biased because we are going through a tough time these days, I really hate it when I go to a hospital and they worker do not take their jobs seriously. I am an IT Tech and I hate it when my coworkers don' t do their job seriously. However, when we screw up, people are inconvenienced. When Health Care workers screw up, people DIE. Here is what happened. My daughter is 6lbs 1oz she was born 5lbs 13 oz, and was as  low as 5lbs and 6oz. Since my daughter was so small she has to have the NICU (Neonatal Intensive Care Unit, I think, feel free to tell me if I am wrong.)  Well the ladies there are wonderful and they are really the only reason we go to this hospital. Well the lady from the Draw Station is not so wonderful. When the Nurses from NICU met us the Blood Draw Nurse gave them 3x 4.5 ml vials of blood to draw which is a lot out of an infant especially one as small as my daughter. The NICU ladies immediately asked her if she was sure this was right because obviously they are used to drawing a lot less. The Blood Draw Lady said "I THINK SO". Seriously? This asked you for to check your blood work not if you have the correct change.  The asked her to call them lab which she did and realized that one of the vials was too large, and when challenged again the blood draw nurse told her just to fill one of them to the top. This is not giving us a lot of confidence that she knew what she was doing. This is extremely hard as this is the second time we are doing this test and it is pretty hard for us as parents to go through. My daughter is a champ she didn't even flinch. However, my wife and I are seriously grateful for the NICU nurses who had no problem standing up for our daughter, and told the Blood Draw Nurse that they will get what they feel is comfortable unless the Blood Draw Nurse was willing to prove in her orders that it should be different.Thank the Lord that SOME people still believe in doing the best job they can do, instead of trying to get through the day.

I apologize for my lack of posts. The good news is that my daughter has been born. She is the cutest little thing in the world. The bad news is that as a result of her newborn screening we are currently having her tested for a CPT Type 2 disorder. In it's most basic terms this means that my  little can't process fat into energy so when she runs low or out of blood sugar she could go into shock. It's apparently very rare, and she might not even have it. However, we are now on our 3rd round of testing and we won't get the results of these for 3 months. The last test showed high so they took a skin graft and more blood to test. Why a skin test? They are trying to grow more cells in order to starve them and check to see if the cells shows signs of this disorder. Since this disorder can be checked in any major organ in the body, skin cells are the least invasive of the tests. I'd rather have her do a skin graft then taking a piece of a liver or muscle. It's just nerve racking as a parent to have to go through this, especially when my daughter is so small to begin with. However we are dealing. I she has this disorder it will basically just involve a lifestyle change and for that I am grateful. I will keep people posted as I find information or if more information is requested.

Almost There!

It's been a long road..pregnancy is such a stressful time! Wet have had some troubling times prior to this pregnancy so we may be a little more anxious than most people would be, however wow have we been up and down. We have been worried about her coming early know we are worried about her because it is do late.my wife wanted a normal pregnancy however this was worse than our previous pregnancy. Food aversions, nausea emotional roller coasters yeah this was fun lol. However it will be worth it on the end and we are so very grateful. We have been anxiously awaiting and are excited....kind of like the night before Christmas.I'll be keeping everyone updated here's to hoping!

It's Time for the Countown!!

We are on the 3 week notice and daughter number 2 will be here! Being the father of a daughter the first time was nerve racking, now I am not even sure I have many nerves left. I have a heard that some guys find it hard to relate to their daughters and feel nervous. That isn't my problem at all. I am really just a big kid anyway. It's I get really overprotective. I can't help it. I am just that kind of guy. I hoping my second daughter doesn't get me to actually call those convents I have been looking at ;-)